Hypersomnia & Long Sleeper
Support Organization JAPAN
The Hypersomnia & Long Sleeper Support Organisation JAPAN was founded in 2011.
Prior to 2017 we were an unofficial support group mainly communicating via services such as LINE or Twitter and held on-line meetings for patients to gather together and talk about their issues and experiences.
Some patients created advertisement and brochures to raise awareness about Hypersomnia & Long Sleepers while others spoke with the government to convince them to include sleep disorder patients in the Japanese social welfare system.
In 2017 we officially registered in Tokyo as an NPO (Non-Profit-Organisation).
To support Hypersomnia and Long Sleeper sufferers by raising awareness of the condition, changing public perception, reduce discrimination, and creating linkages to medical and research services.
We are an NPO and all our participants and members are volunteers. Our organisation does not take any financial profits from our activities.
・Kleine-Levin syndrome, Recurrent Hypersomnia
・Long Sleeper Syndrome
・Circadian rhythm sleep disorders
Create website content in Japanese
Hold online support groups and events; discussing issues, challenges and experiences in Japanese
Lobby the Government to get recognition under social welfare including; handicapped license approval, financial support for medicine and reduced doctor fees in Japan
Create and distribute awareness material to schools, hospitals and health clinics in Japan
Give advice to those who are looking for a doctor in Japan
We have full-time English speaking staff.
You can send your message in English.
We aim to do our hypersomnia raise awareness campaine or other activities internationally.
We are happy to have connection with overseas organisation.
*Please note, our patients support is limited to Japan.
Looking forward your contact.